I've decided to grow out my hair.
I want it to cover my body when I am nude. My lack of brushing it, I'm sure will become a problem the longer it gets but... this is one reason why @heathermariej4169 is amazing... she will brush it out. (:< #thebeatles #lips #hair #longhair #ineedfood
From a few weeks ago in Iowa... i sorta liked the cold weather there, and i really like this picture.. ♡ #carselfie #hats #cf #breathinglikeaboss #bored #winter #cold #amazingbf #cysters #fibros #cute #warm
Boyfriend left and it's just me and the dawwggie... sorta bored but I really do have the best nurses and rt's that are the best. ♡
#hospital #cysticfibrosis #smile #stuffedanimals #shutmydoor #furpics #cf #breathe #twentythree #inflammation #lungssuck #lungs #arizona
Haha this is my favorite picture of him.
We have a box.. that we write little notes in all the time. We fold up the little pieces of paper and never look at what the other one has written. They are our random memories. Things that's happened that's made us laugh, and things that has made us, "us". Both having CF, we know the future we will have to face... Our deal is... when one of us is unconscious in the hospital, or sedated, whatever... then we will read the notes to one another. We will read them in hopes of the other person coming back to them.
Well guys... I'm sorta in love.
My oxygen is way too low, my stomach hurts way too bad, and i feel all ghetto by some recent personal experiences. However... Tomarrow I am going tubing in some river or stream in Arizona, and if I have to shit in this stream then so be it hahah I'm not missing it. (:< #determined #cflifesnotforme
This is Sam, he has cf also! Hes made me realize that when someone does something for me, I shouldn't feel guilty about it bc it's not thrown in my face later on. I've realized that I've spent 3 years of my life really depressed and stressed, and bc of that, my health is now irreversible. I've realized that I shouldn't feel like my sickness is a burden on anyone and I'm done competing with, "being in your young 20s phase". My biggest fear before was "is he going to be faithful during and after transplant." And now.. it's "If I don't get a cage for my new puppy I'm gonna pull all my hair out."
I know I've made a lot of changes in my life rescently, but for once... they were for me.